News
11 Jul 2023
Clinical trials research needs recommendations
The Rare Diseases (RD) Moonshot was set up to boost public private collaborations in the areas where there are with no treatment options and there is no R&D going on. Â Â
The RD Moonshot partn...
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14 Jun 2023
Rare Diseases Moonshot partners welcome the pre-publication of the draft future Innovative Health Initiative (IHI) call topic: ‘Establishing novel approaches to improve clinical trials for rare and ultra-rare diseases’
The Rare Disease (RD) Moonshot partners welcome the inclusion of the rare and ultra-rare diseases in a recent IHI call topic which aims to establish novel approaches to improve clinical trials to ulti...
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28 Feb 2023
How the Rare Disease Moonshot can unlock science for patients
A guest blog by Magda Chlebus, Executive Director Science Policy and Regulatory at EFPIA
Sometimes the most exciting areas to work in are those facing complex challenges, where the scope for making...
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12 Dec 2022
TOWARDS A RARE DISEASE MOONSHOT: SCALING UP PUBLIC PRIVATE PARTNERSHIPS TO ACCELERATE RESEARCH
If you missed the launch of the Rare Disease Moonshot, you can watch it here...
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08 Dec 2022
‘Rare Disease Moonshot’ – Scaling-up public-private partnerships to accelerate research into world’s rarest diseases
A new initiative to boost research and development into rare and paediatric diseases will launch today at the European Health Summit.
The ‘Rare Disease Moonshot’ is a commitment and collabora...
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