News - Rare Disease Moonshot

11 Jul 2023

Clinical trials research needs recommendations

The Rare Diseases (RD) Moonshot was set up to boost public private collaborations in the areas where there are with no treatment options and there is no R&D going on. The RD Moonshot partn...

14 Jun 2023

Rare Diseases Moonshot partners welcome the pre-publication of the draft future Innovative Health Initiative (IHI) call topic: ‘Establishing novel approaches to improve clinical trials for rare and ultra-rare diseases’

The Rare Disease (RD) Moonshot partners welcome the inclusion of the rare and ultra-rare diseases in a recent IHI call topic which aims to establish novel approaches to improve clinical trials to ulti...

28 Feb 2023

How the Rare Disease Moonshot can unlock science for patients

A guest blog by Magda Chlebus, Executive Director Science Policy and Regulatory at EFPIA Sometimes the most exciting areas to work in are those facing complex challenges, where the scope for making...

12 Dec 2022

TOWARDS A RARE DISEASE MOONSHOT: SCALING UP PUBLIC PRIVATE PARTNERSHIPS TO ACCELERATE RESEARCH

If you missed the launch of the Rare Disease Moonshot, you can watch it here...

08 Dec 2022

‘Rare Disease Moonshot’ – Scaling-up public-private partnerships to accelerate research into world’s rarest diseases

A new initiative to boost research and development into rare and paediatric diseases will launch today at the European Health Summit. The ‘Rare Disease Moonshot’ is a commitment and collabora...